Let's make a difference, one BEAT at a time!

Be a part of our ambitious study to develop better ways to predict, prevent and treat atrial fibrillation.

Join the Study
Brought to you by
Powered by

Why join the study?

1 in 6 strokes are caused by AFib. If you're 18 years or older, you can see if you are eligible to join the study and help us BEAT AFib! You can make a difference whether you have AFib or not.

Our goals

The Biomarkers of Early Atrial Transformation in Atrial Fibrillation (BEAT-AFib) Study hopes to understand what causes AFib and AFib episodes. We hope to develop new ways to identify people at risk for AFib, to develop ways to prevent AFib, and learn about predictors of successful AF ablation or other treatment, enabling more personalized AFib treatment and prevention.

How does it work?

If you choose to participate, you will:

  • Answer surveys every 3-6 months using our smartphone app or website
  • Take your own ECG measurements with an ECG device we will give you
  • Automatically contribute sleep and activity data through our smartphone app
  • Have a visit once a year for three years where you will get blood drawn and undergo special testing in the clinic (such as an ECG and Echocardiogram)

We can do this together.

Join the Study

Our Goals

You Can Help Us Advance Science
If you're 18 years or older, you can see if you are eligible to join the study! You can make a difference whether you have AFib or not. So join the study and help us BEAT AFib!

Just a few things we hope to achieve:

Develop new ways to identify people at risk for, to screen for, and to diagnose atrial fibrillation as early as possible.

Discover markers that could lead to development of new ways to prevent atrial fibrillation and to predict who will respond best to AF ablation or other treatment.

Develop new ways to personalize treatment of atrial fibrillation.


The Science

Using new technology to answer big questions
Our team is comprised of talented and diverse academic physicians and researchers who want to find ways to prevent and treat atrial fibrillation. If you join, you'll contribute data to help us get the answers to important questions to BEAT AFib. Your secure data, along with data from other participants, will allow us to understand how behavior, physiologic changes, blood markers and other factors contribute to the development of atrial fibrillation and to specific episodes of atrial fibrillation.

Just a few things we're investigating:

1

Can markers in blood, features on imaging and EKGs, and digital biomarkers of behavior (sleep, exercise, and stress) predict occurrence, progression or discrete episodes of atrial fibrillation?

2

Can we use these markers to develop new ways to identify those most at risk for atrial fibrillation?

3

Can we develop ways to prevent the development of atrial fibrillation in those most at risk?

4

Can we develop ways to modify behavior or physiologic changes that predict a future episode to atrial fibrillation?

We can do this together.

Join the Study

FAQs

How do I register for the Study?

If you are interested in participating, reach out to our study team at beatafib@eurekaplatform.org and BeatAFib@ucsf.edu or call us at (415) 514-7563. One of our research coordinators will reach out to you to give you more information about the study and help guide you through the registration process.

Why do I have to sign a consent form?

Once you register, you'll be taken to the consent page. This is a research study, and the UCSF Committee on Human Research (also known as an IRB or Ethics Board) approves and regulates all research studies conducted at UCSF. These consent forms outline the study and exactly what your role will be.

How is the study organized?

The BEAT-AFib Study is separated into two parts: in-person visits and eVisits. For the annual in-person visits you will visit one of our study sites at UCSF and meet with one of our clinical research coordinators who will guide you through the study which includes taking your vital signs, collecting a blood sample, performing an EKG and an Echo, etc. Our coordinators will also give you devices to use at home to help collect information about your heart. The other half of the study are eVisits-several sections of easy-to-complete surveys and other study activities-for you to complete every six months.

What's expected of me?

We would like you to participate in our annual in-person visits including annual blood draws for at least seven years so we can track how your health changes over time. During the study process we encourage you to answer the study’s health-related questions and check in regularly, so we have your most up-to-date information. In addition to our study, we will provide you with mobile devices (AliveCor and VivaLNK) that monitors your sleep and activity through a smartphone app.

What are the surveys all about?

You can do each survey online or on your smartphone at your leisure, typically in less than five minutes. Most of them are very basic, but a few require some additional effort. For example, you might have to gather medical history information from family members or obtain certain measurements (such as a blood pressure check or a test in your doctor's office or local pharmacy). Some of them may ask for sensitive information such as next of kin or detailed contact information. All of them will help us learn how to prevent and treat atrial fibrillation.

How often do I have to take these surveys?

You will have an eVisit about every 6 months when we’ll ask you to complete a series of surveys. The first one will be the longest in order to collect all the baseline information. You can do the surveys in each eVisit all at once or spread them out over time. And, we’ll remind you when they are due and when you have new ones to complete. Once you finish a survey, a new one will automatically appear on the homepage until you've completed all of the surveys in that eVisit (and you’ll be able to see your progress along the way).

Do I need to have a smartphone to participate?

Yes, you need to have a smartphone (iPhone or Android) in order to take part in this study.

Is my data safe?

Absolutely. We take this VERY seriously, and will do everything we can to protect your information and keep it private and secure. Read the Privacy Policy here.

Do you share my information?

Absolutely not. We will never sell, rent, or lease your information, and we will never voluntarily share your information without your permission.

What is my information used for?

We will use your information for research. We collect information about your identity, your health, and your behavior in the BEAT-AFib Study. This information will be used in research analyses and results of these analyses will be presented in scientific conferences and published. These presentations and publications will never show any information that could identify you.

What about my privacy?

Protection Against Involuntary Disclosure of Your Information: To help us protect your privacy, we have applied for a Certificate of Confidentiality from the United States Department of Health and Human Services (DHHS). This certificate protects against compulsory legal demands, such as court orders and subpoenas, for identifying information or identifying characteristics of a research participant. The Health eHeart Study staff can't be forced to disclose study information that identifies you, even if ordered by a court subpoena, in any federal, state, or local civil, criminal, administrative, legislative, or other proceedings. The researchers will use the certificate to resist any demands for information that would identify you, except to prevent serious harm to yourself or others. We will, in all cases, take the necessary action, including reporting to authorities, to prevent serious harm to yourself or others. Read the Privacy Policy here.

Do you follow HIPAA rules?

Electronic Security and Adherence to the HIPAA Privacy Rule: The Health eHeart Study follows the security guidelines of the U.S. Health Insurance Portability and Accountability Act of 1996 (HIPAA). All study data is transmitted, stored, and processed in a secure environment.

What if I have questions about the study?

Once you've signed up for the study, you'll be assigned a personal research coordinator who you'll be able to contact by email or phone with any questions. They'll also email you important reminders and news about the study, if you wish. If you have questions about the study before you sign up, or if you have difficulty signing up, please email us at BeatAFib@ucsf.edu

Contact us

Feel free to reach out with questions about the study.